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McPin Foundation

McPin Foundation

4 Projects, page 1 of 1
  • Funder: UK Research and Innovation Project Code: MR/V029339/1
    Funder Contribution: 201,342 GBP

    During the COVID-19 pandemic young people have been exposed to established risk factors for psychopathology and have been struggling to access support from schools and CAMHS. Existing psycho-educational materials typically targeted parents to deliver support to their children or adolescents. This passive transfer of information is unlikely to work well with older adolescents (14-24 years), who progressively separate from their parents and strive to gain agency. To support young people's mental health, we will co-produce novel, engaging psycho-educational materials with adolescents and creative professionals, and rapidly disseminate them widely across the UK. First, we will capitalise on the wealth of data emerging from ongoing longitudinal surveys to capture young people's voices about their mental health concerns and on our expertise in identifying and delivering evidence-based interventions. Second, we will work with young people to prioritise the mental health concerns and to ensure that the content built from evidence-based interventions is clear and relevant. We will then work with young people and creative professionals to produce the materials in the most engaging way. Third, we will disseminate the materials produced widely thought social media campaigns and our established links with voluntary organisations across the UK. The materials will also be disseminated across all devolved nations in partnership with local senior clinicians. This work will be responsive to the changing mental health needs of young people in the months ahead. We have also ensured that content development, production, and dissemination can be undertaken both in-person or remotely, maximising feasibility.

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  • Funder: UK Research and Innovation Project Code: ES/S004424/1
    Funder Contribution: 1,020,180 GBP

    Violence and abuse are endemic globally. In the most recent Crime Survey in England and Wales, 2% reported past-year community violence (where most victims were men). Domestic violence or abuse (physical, sexual, psychological, economic and controlling or coercive behaviour) in the last year was reported by 7.5% of women and 4.3% of men, with victims of repeated or severe domestic violence and/or sexual violence more likely to be women. Most previous mental health research has neglected the impact of domestic and sexual violence on mental health and well-being, so our network will prioritise these, and their links with childhood experiences, and mental health in childhood and adulthood. We know that people with mental health problems are more likely to be victims of domestic or sexual violence, or have witnessed parental violence as a child; some mental health problems are also, much less commonly, associated with committing violent acts though there is very little known about this in relation to domestic violence perpetration. The UK government has recognised that preventing and reducing the impact of domestic and sexual violence and abuse is an important way to improve mental health. This network aims to reduce the prevalence of mental health problems among children, working age adults, and the elderly, by bringing together experts with different ways of thinking about violence, abuse and mental health - some will have personal experience of these issues, others will have expertise from the work that they do, and survivor researchers have expertise born of lived experience and their work. Understanding, preventing and reducing the impact of violence and abuse on mental health requires that we resolve problems that have prevented progress in the past. Firstly, different organisations mean different things when they talk about violence and abuse. This has meant that violence and abuse, and mental health, are measured in different ways by different organisations, and that information collected about violence and abuse does not tell us what we need to know. For example, mental health surveys sometimes ask about violence, but do not ask about the relationship between the victim or perpetrator, what type of violence was experienced, or how it impacted on mental health. Secondly, we have limited knowledge of how and why experiencing different types of violence and abuse increases the risk of developing mental disorders, or how new digital technologies are changing people's experiences of abuse and how this impacts on mental health. Thirdly, we do not have interventions that are effective in preventing or reducing violence experienced by people with mental health problems, or programmes that reduce the risk of mental health problems developing after experiences of violence or abuse. Network activities will address these challenges through: 1) working with people who have personal experience of violence, abuse, and mental health problems to learn from different perspectives, and generate fresh ideas and research questions, with a focus on the commonest types of violence- domestic and sexual violence and abuse; 2) trying to answer research questions through small grant competitions, workshops, conferences, and other events; some of these will lead to larger grant applications; 3) sharing measurement approaches, including how to ethically and safely research this area, which will help data collection and analysis by health services, the criminal justice system, family courts, social care, charities, and researchers. We will also develop an online resource providing information about datasets that can be used in research in the future. We aim to make our results known by publicising them widely through our network and other organisations, including policy makers within NHS England, Public Health England and the National Institute for Health and Social Care Excellence, technology companies and the general public.

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  • Funder: UK Research and Innovation Project Code: BB/V011707/1
    Funder Contribution: 339,378 GBP

    PROJECT APPROACH The C-STACS project will bring citizen science approaches to mental health. CHALLENGE: CITIZEN SCIENCE IS NEW TO MENTAL HEALTH Citizen science approaches have not yet been used at scale in mental health. We reviewed citizen science platforms. UK-based Zooniverse has no active, paused or finished mental health-related projects. EU-based eu-citizen.science has one project (CoAct) which includes mental health as one of several global concerns being addressed. USA-based scistarter.org has one project (neureka) using gamification for dementia research. The citizen science projects related to health which do exist typically involve biological and physical health research (e.g. www.cellslider.net, 100forParkinsons App, Colony B App). A more general internet search for citizen science and mental health identifies a few specific studies, e.g. the Emotional Brain Study addressing neuropsychological aspects of mental health and the MH2K Oldham project involving a youth-led approach to mental health, both in the UK, and the Games X Mental Health study exploring interactions between people with mental health problems and their informal carers in Spain. Two citizen science projects have taken place in the UK in relation to the overlapping area of wellbeing: the Secrets of Happiness study which ran in 2018 and has not published results, and the Great British Wellbeing Survey running in 2020. In relation to new projects, no mental health studies were funded as a UKRI Citizen Science Exploration Grant. Turning to publications, again very little has been written about citizen science and mental health. The 2020 ECSA report on characteristics of citizen science provides a useful foundation but no mental health specific guidance. A 2020 overview report by RAND Europe on emerging developments in citizen science identified the potential for new types of health research, such as personal health tracking / n-of-1 studies, but with no mention of mental health. A 2018 paper (https://doi.org/10.1093/heapro/daw086) on citizen science applied to public health provides a useful typology of project characteristics: Aims (investigation, education, collective good, action), Approaches (extreme, participatory science, distributed intelligence, crowd sourcing) and Size (local, mass). Our project will be mass participatory science, with aims of collective good (WP2) and action (WP3). Other papers have used citizen science in cognate areas, e.g. urban stress (https://doi.org/10.1057/s41599-020-0460-1). A 2019 position paper locates citizen science in relation to health research (https://doi.org/10.1080/15265161.2019.1619859), noting the connection with participatory action research and community-based participatory research traditions, and identifies community-driven 'n-of-we' studies which align with the current proposal. The paper also discusses general ethical issues of citizen science in health research, including consent, participation risks/benefits, data ownership and attribution, which have informed the WP1 focus on these issues. Finally, a search of the 'Citizen Science' journal identified one paper (https://doi.org/10.5334/cstp.184) discussing patient partners in health research. WORK PACKAGES (WPs) WP1 develops a theoretical foundation for citizen science in mental health, and prepares for WP2 and WP3. Mental health has a very established tradition of public involvement, coproduction and peer-led research, and mapping between mental health and citizen science constructs will be a key project output. WPs 2 and 3 address specific challenges outlined in the case for support, using Zooniverse as an online platform to support mass participation. WP2 creates new knowledge about supporting mental health recovery and WP3 about how people living with mental health problems actually look after themselves. WP4 mobilises the findings from WPs 1 to 3 to maximise impact.

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  • Funder: UK Research and Innovation Project Code: MR/W002450/1
    Funder Contribution: 3,935,070 GBP

    We will work with young people to use digital technology to transform adolescent mental health and provide a safe, and supportive, digital environment to tackle the unmet need arising from mental health disorders in those aged 10-24 years old. We are facing a youth mental health crisis; in the UK, one in eight young people have a mental health disorder, and one in four young women aged 17-19 have significant depression or anxiety with half of those having self-harmed; non-suicidal self-harm has nearly tripled over the past 10 years, while suicide rates per 100,000 adolescents have almost doubled. However, less than a third of all young people with mental health disorders receive any treatment. Many mental health and wellbeing apps exist, but most have no evidence base and some could even be harmful. Meanwhile, few research-based digital interventions have been shown to have impact in the real world. The youth mental health crisis has coincided with huge changes in society with creation of the 'digital environment' where being online and using social media has become central to young people's lives. While social media can be a helpful place for accessing information, exchanging views and receiving support, it has also been linked with depression, suicide and self-harm. Yet not all young people are at risk of mental health problems with social media we don't yet understand why some young people are more vulnerable than others. The COVID-19 crisis has been associated with increased mental health problems and greater online activity in young people. While their need to access trusted support online is greater than ever, social media platforms are not designed to meet mental health needs of young people. Aims & objectives. We will work with young people in our Young Person Advisory Group to: 1. increase understanding of the relationship between digital risk, resilience and adolescent mental health. 2. develop and evaluate preventative and personalised digital interventions. We aim to: - identify risk and resilience factors related to troublesome online experiences and activities, to prevent or reduce the emergence of depression, anxiety, and self-harm in young people. - understand how individual differences affect digital engagement (e.g. with social media and games) and adolescent brain and psychosocial development. - build, adapt and pilot new a generation of personalised and adaptive digital interventions incorporating a mechanistic understanding of human support with a new digital platform for delivery and trials in adolescent mental health conditions. - develop and test a novel socially assistive robot to help regulate difficult emotions with a focus on adolescents who self-harm. - develop and test a new digital tool to help adolescents better manage impulsive and risky behaviour with a focus on reducing the risk of self-harm. Applications & benefits. This work will translate new knowledge into practical tools to support young people negotiate the digital world, develop resilience and protect their mental health. Our involvement of young people means that the outputs from the research will be suitable and meaningful. Young people will be actively involved shaping the research at all stages. Young people, their caregivers, teachers, clinicians and charities will benefit from a range of co-created apps and tools to manage youth mental health issues. Young people will benefit from research training offered as part of their involvement. Policy makers and academics will benefit from new understandings of risk and resilience in the digital world to support novel interventions and evidence-based policy. Our work will establish a new, ethical and responsible way of designing digital platforms and tools that supports young people's mental health. Our Mental Health & Digital Technology Policy Liaison Group and Partners Board will translate our research into a step-change in mental health outcomes.

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