
Northern Ireland Museums Council
Northern Ireland Museums Council
2 Projects, page 1 of 1
assignment_turned_in Project2019 - 2022Partners:Alzheimer's Society, Dementia NI, QUB, Alzheimer's Society, Northern Ireland Museums Council +2 partnersAlzheimer's Society,Dementia NI,QUB,Alzheimer's Society,Northern Ireland Museums Council,Northern Ireland Museums Council,Dementia NIFunder: UK Research and Innovation Project Code: AH/S001476/1Funder Contribution: 189,126 GBPOne of the most rewarding aspects of reading a novel is the experience of seeing the world through the eyes of a character, especially when it offers a new or unusual perspective, known as 'mind style' in literary linguistics. This is the first comprehensive mind style analysis of dementia narratives, including Elizabeth is Missing (Healey 2015), The Corrections (Franzen 2010), The Wilderness (Harvey 2010) and Still Alice (Genova 2007) amongst others. Because of the wide-ranging ways dementia can be experienced and depicted, this project will push the boundaries of the mind style model, developing its scope and analytical power. However, this project also investigates how literary language depicting the minds of characters with dementia can provide a 'way in' to understanding a socially stigmatised condition associated with loss of personhood. Some might argue that fictional representations of dementia have little relevance to real experiences: our contention is that dementia is different for everyone, so there is no 'real' means of measuring representative accuracy, nor should fiction conform to 'reality'. Indeed, fiction is unique in the way that it lets us access the workings of other peoples' minds so closely. To illustrate, we offer a short vignette of how Jonathan Franzen, in his award-winning book The Corrections, uses mind style to take the reader inside the mind of Alfred, a character with dementia: Alfred was standing in the master bedroom wondering why the drawers of his dresser were open, who had opened them, whether he had opened them himself. He couldn't help blaming Enid for his confusion. For witnessing it into existence. For existing, herself, as a person who could have opened these drawers. Alfred's confusion and agitation is iconically represented in the listed questions 'wondering why...who...whether...'. The use of repetitive, speech-like, 'live' sentence constructions 'for-, 'for-', 'for-', involves us in Alfred's search for blame. In our pilot study (Lugea et al 2017), we asked participants in a Reading Group to listen to a longer version of this extract, underlining features of interest, completing a short questionnaire, and engaging in a group discussion. A participant living with dementia reported, 'this is my life' and other readers reported feeling as if they had access to Alfred's thoughts and experience. This vignette illustrates a major advantage of using literary representations of dementia: fictional mind styles allow us to show, rather than tell people what it is like to experience dementia. Our project uses fictional extracts which display features of dementia mind styles to explore the potential of fiction to unlock deeper understanding and empathy towards people with dementia. The Reading Groups will include: 1. people in the early stages of dementia 2. caregivers 3. social work/policy students 4. the general public The readers' responses will inform our analyses of the fictional texts, developing the mind style model itself and providing further empirical insight into how real readers interact with fictional characters. The findings will be shared in academic, social policy and cultural settings. We will publish a booklet to be used in ongoing dementia training and support. The project will culminate in a Dementia Fiction Festival, celebrating the boom of fiction on the topic and contributing to the growing public awareness of the condition. The texts analysed, as well as works from local and international authors, will be showcased through live readings, performances and screenings. With the support of dementia charities, the events will be dementia-friendly, giving people living with dementia a rare chance to engage in directly-relevant cultural activities. Ultimately, we provide a method which could be replicated to improve cultural understandings and empathy towards dementia in other contexts, and similar illnesses in any context.
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For further information contact us at helpdesk@openaire.euassignment_turned_in Project2020 - 2022Partners:University of Ulster, National Lottery Heritage Fund, Northern Ireland Museums Council, UU, The National Lottery Heritage Fund +5 partnersUniversity of Ulster,National Lottery Heritage Fund,Northern Ireland Museums Council,UU,The National Lottery Heritage Fund,Museums Association,Derry & Strabane District Council,Derry & Strabane District Council,Northern Ireland Museums Council,Museums AssociationFunder: UK Research and Innovation Project Code: AH/V012819/1Funder Contribution: 201,758 GBPThe Covid-19 crisis is having a significant impact on the museum sector, nationally and globally. It is exposing the vulnerability of museums, their staff, projects and collections. Elsewhere, innovative programming is demonstrating the vitality and versatility of an engaged, responsive and participatory museum service, proving that museums are places of relevance even in a crisis. This research project focuses on how museums can continue to contribute to community resilience and wellbeing in a time of crisis. It addresses sector adaptability as it adjusts audience engagement and collaboration (such as new collecting practices, programming and exhibitions) in response to Covid-19. The differing responses during the Covid-19 crisis - in some museums staff were furloughed yet elsewhere they have been involved in responsive projects - uncovers deeper attitudes to the essential (or otherwise) nature of museum services. Going forward, this project will lead and inform the sector as it adapts to effective community-digital possibilities that still embraces new thinking in participation and engagement. Alongside this, the project evaluates how we adapt our practices to be mindful of audience diversity, digital poverty, and the isolation challenges for vulnerable audiences arising from Covid-19. Rising to that challenge this project: 1. identifies how museum pedagogy and practices must adapt to new audience needs; 2. explores possibilities for co-produced community-digital innovation; and, 3. investigates the offer museums can make to support community resilience during and in the aftermath of the Covid-19 crisis. The importance of this project lies in the following areas. Firstly, new knowledge about the understanding of the impact of Covid-19 on the museum sector in NI that will both inform the Department for Communities (DfC) and have national relevance. Secondly, by generating new thinking around the community-digital dynamic and leading innovation as museums adapt. Thirdly, understanding the new needs around community resilience and wellbeing, arising from Covid-19. The Museums Association's response to the Covid-19 enquiry described museums as vital in supporting communities, promoting community cohesion, enabling wellbeing, and reflection on significant public issues. Many of our museums work with vulnerable groups, who will remain cautious/shielding post lockdown e.g. the Dementia Friendly Programme (NI Museums Council). This project will investigate the impact of putting such programmes on hold, how they can be effectively adapted/reinstated, and make recommendations for immediate application/future planning.
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