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Health Professional Responses to Deathbed Phenomena: Implications for medical knowledge and care

Funder: Wellcome TrustProject code: 223287
Funded under: Medical Humanities Funder Contribution: 94,754 GBP

Health Professional Responses to Deathbed Phenomena: Implications for medical knowledge and care

Description

Meaningful dreams, visions and coincidences are a remarkably common feature of the dying process. While patients and families report their profound spiritual significance, mainstream clinical literature explains them in materialist terms. This project asks how health professionals respond to such events on the ground, whether they reflect this materialist approach or if there are examples of healthworkers engaging in more ontologically and epistemologically open ways. The research will explore how philosophical responses influence the day-to-day practices of care. It will also ask whether variation in interpretations of such events runs along existing lines of social or cultural difference among both healthworkers and patients. I will take a methodologically interdisciplinary approach combining an ethnography of a hospice in-patient unit (utilising my experience as a palliative care nurse) with narrative interviews of staff who have responded to deathbed experiences. Drawing on feminist care theory, science and technology studies and the medical humanities this study will explore the significance of responses to deathbed phenomena for both clinical knowledge practices and patient care. People often experience meaningful dreams and visions in the last days of their life. Healthcare professionals who work with dying patients acknowledge these events, even using them to predict when someone is likely to die. However the content of these experiences tend to be dismissed as unreal. This can create a disconnect with patients / families who often find them emotionally and spiritually valuable. Does this disconnect affect the ability of healthworkers to effectively care for patients in such moments? Arguably if something is not real, it does not matter and things that do not matter do not require care. Through working in a hospice and interviewing health professionals my project will explore whether this is the case or whether nurses, doctors and other staff do take these experiences seriously. If so, what are the consequences for how we understand what matters and what does not in medicine more broadly?

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